Debra Ireland (the Dystrophic Epidermolysis Bullosa Research Association) was set up by families of children with EB in 1988. We are funded by donations, fundraising and grant support. Epidermolysis Bullosa -EB- is a distressing and painful genetic skin disorder causng skin layers and body linings to separate and blister at the slightest touch. Children born with EB have skin that is as fragile as the wings of a butterfly - and as easily damaged.